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The Kids for Life Down Syndrome Resource Centre


‘When a baby with Down Syndrome is born, the most important thing that has happened is that a baby has been born’. Down Syndrome affects 1 in 700 live babies.

When a mother gives birth to a baby with Down Syndrome it is usually a profoundly isolating experience. Reactions to the diagnosis are commonly anger, grief, sadness and a sense of loss. Following the emotional upheaval, is a desperate desire for information. Parents seek answers to so many questions. What is Down Syndrome? What will it mean to raise a child with Down Syndrome? What quality of life will they have? How will we cope financially? What services can we access? And so on.

Down Syndrome NSW aims for all children with Down Syndrome to reach their full potential and lead confident, healthy, active and fulfilling lives as family members and citizens. The key to achieving this is early assistance and intervention. For this to happen, families and support services need to have access to accurate, up-to-date information, support and resources.

To meet these needs, Kids For Life  and Down Syndrome NSW plan to establish the Kids For Life Down Syndrome Resource Centre in Sydney, a resource and education centre for children with Down Syndrome and their families. The centre will also service as a resource hub for schools and community services that work with children with Down Syndrome.

The Kids For Life Down Syndrome Resource Centre will house an expanded Family Support team who will do hospital and home visits and provide phone and email support to new families. The team includes parents of children with Down Syndrome as well as trained experts who can help provide answers or recommend and provide access to a wide range of materials, books, videos and other resources.
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